Monthly Archives: September 2012

No one planned for this…a personal story of advocacy…

Posted on September 27, 2012 by Christie Zink

Along this journey, I have had the privilege to meet some amazing people, people who share my passion, people like my friend Andrea Ness.   Andrea like me has chosen this path because she was impacted by a  life that was cut short because … Continue reading →

Posted in Epidermolysis Bullosa | Tagged , , , , , | 8 Comments

The heart of research…finding a cure for EB

Posted on September 8, 2012 by Christie Zink

Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to … Continue reading →

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EB Advocacy…a personal story

Posted on September 4, 2012 by Christie Zink

Some of us have chosen this path of advocacy because we have been impacted in some way by a story we have read or someone we have met.  Others have been set on this path not by choice, but because … Continue reading →

Posted in Epidermolysis Bullosa, Uncategorized | Tagged , , , , | 1 Comment