FOR RELEASE BEFORE OCTOBER XX, 2XXX
Local Woman-Owned Business Spreads Epidermolysis Bullosa Awareness across the country
City, State – Local business owner is helping bring awareness to rare genetic skin condition, Epidermolysis Bullosa (EB) and doing her part to raise funds for research in a unique online effort.
XXXXX, owner of XXXXX is temporarily putting business on hold to participate in an online event designed to bring awareness of Epidermolysis Bullosa across the country.
This month-long event is taking place on IRefuseeb.org, a community advocates who network and share resources to help support families and raise funds for research. In October 2012, this community is banding together to bring awareness of EB and raise funds for EB charities. The event includes information, resources and stories of inspirational children and adults who have been affected. Fundraisers include a number of mom entrepreneurs that are donating a generous portion of their sales..
[Last Name] is personally contributing to this event by [add what you are doing to promote and contribute to the event].
Epidermolysis Bullosa is a rare genetic connective tissue disorder that causes painful blistering of the skin and the mucous membranes. It affects one in every 50,000 live births and can often times be fatal within the first year. Those affected endure extreme pain daily, there really is never any reprieve. There is NO CURE.
Says [Last Name], “[Add why you decided to be a part of this event. Personal reasons (say what they are), supporting women, etc. etc.].”
[Business Name] can be found on the world wide web at [insert your URL here]. Full Breast Cancer Awareness Event details can be found at www.youreventdomain.com