Category Archives: I Refuse

The heart of research…finding a cure for EB

Posted on September 8, 2012 by Christie Zink

Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to … Continue reading →

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What is your I Refuse Statement?

Posted on August 7, 2012 by Christie Zink

Some of us have chosen this path of advocacy and some of us were thrust into it abruptly with the birth of a precious child.  However you have arrived on this journey, you do have the power to make a … Continue reading →

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