So many things in life do not come easily…we are often faced with many challenges and obstacles. However, it is within our power to overcome; to not give up. Sometimes, we just need a little reminder to let us know it is worth it.
When I began on this journey, I put
everything that I had into it. It was something that I undoubtedly became very passionate about.In all reality, it was not hard to be so inspired and motivated. It came relatively easy and I never once thought about what my life would be like two years later.
It has become a labor of love…something that is hard for me to describe. However, I have
found that when you put your whole heart into something, it can often times be very challenging. Not everyone will understand or agree with it, not everyone will believe in your intentions and there will be times when negativity creeps in and you ask yourself if it is worth it, am I truly making a difference?
When you put yourself out there in a public way, you must expect that you may be scrutinized, however I never considered that. I never thought about the fact that there would be negative comments or that there would be people who were against what I was doing. I knew what I felt in my heart and I just went with it, it was the right thing to do and that is all that really mattered to me.
Eventually, I was more than aware of the negativity that existed and I as much as I hate to admit it, I began to lose focus and I started to worry more about others perceptions. My skin was not as thick as I had hoped it would be and it was hard not to take criticism personally. This was not the path I wanted to go down and yet I found myself right in the middle of it questioning myself. The problem was, I was asking the wrong questions. I needed to remind myself of the “why” and stop worrying about the rest. I needed to remember why this all started and where it came from.
Why? Why is this so important to me? It is important to me because I want to help people; make a difference. I want to share stories of triumph, stories that inspire. I want to honor those who fight and remember those who are gone. I want people to be educated and aware. But, you know what I want more than anything? I want to watch Jackson, Anton, Blake, Melina, Eli and all of the kids I have come to know and love, run and play without worry. I want them to be kids, kids who are not stared at or whispered about.
I want to watch my friend Charlie graduate from high school and go on to achieve great things! I want to see my friend Rachael continue to achieve her dreams. I want those with EB to be free of the bandages because in my heart, I believe that everyone deserves a life without pain. I want to see success instead of sorrow. I want a cure.
This is what is in my heart and it has been there all a long, I just needed a reminder of why I do what I do and why I need to look beyond negativity and do what is in my heart. And I got that all because of a little kiss…thank you Charlie. (And Jackson too!)
So, my point is, I know it is not always easy to do the right thing when it feels like it is the unpopular choice. Your heart knows better than any naysayer, and it will lead you on the path that is right.
Regardless of what others say, do what you feel is right. You can do anything you put your heart into. It is worth it…there is no doubt about that! I have seen it over and over and it is the most beautiful gift we can give others and ourselves.