It was Time to Fly and we FLEW

In our lives we are given many different opportunities; opportunities to help, opportunities to encourage, opportunities to be inspired and opportunities to help make a difference in the lives of others.  These last few months I was fortunate to have been presented with many of these opportunities multiple times as I prepared for this year’s Time to Fly event…it was certainly more than I could have ever imagined.

I set out this year with the hope that I could build a great team who would come together to help raise awareness for EB as well as funds for research.  What I got was something far more than that!


Over 100 (114 to be exact) amazing people from all over the United States came together to form TEAM PUCK and together we helped raise over $34,000 for EB research.  It was nothing short of AMAZING!  As the team captain, I was so moved by the support and dedication of my team.  I am so incredibly grateful and I THANK YOU!  I have been inspired beyond words!

Again, I just want to give a heartfelt thank you to all for making each step count…for taking a chance and helping me.  Our team accomplished great things and it was because of your hard work and your support that we were able to surpass all of our 2012 totals.  So many of you you accomplished your own personal goals and for some this may have been your very first run.  Be proud, be very proud, for you are destined for great things…each of you has a passion that shines and I had the chance to see that.

I would also like to take a moment to thank all of our MANY supporters…they are far too numerous to list, but know that your support has been amazing.  Our fundraising efforts are successful because of your donations and constant encouragement. To those who helped through promoting and purchasing I Refuse EB merchandise, thank you for continuing to get the word out about EB and educating others…you are all AWARENESS SUPERSTARS!

So, for TEAM PUCK and our supporters…

Continue to be amazing…next near we will ROCK IT AGAIN!!