Blogs

 

“EB”ing a Mommy

Courtney Roth’s powerful and inspiring blog about her son Tripp’s journey with Junctional Epidermolysis Bullosa.

Before the Morning

Patrice Williams chronicles life with their son Jonah who suffers from Junctional EB Non Herlitz.

 

Good Times Delgado Style

Vanessa and Jason Delgado share their experiences and the role that faith plays in their lives.

My Romanian Butterfly

Caroline Ruhl and he journey as an advocate and caregiver for Romanian orphan Raul, who suffers from Recessive Dystrophic EB.

 

 Cure EB – Believe

Kerri Spinazola EB mom and a passionate advocate for her daughter Melina and all of this who suffer.  She created this site to help raise awareness and educate others about EB.

 

 

 

 Loving Our Little Monkey

Daylon’s story is one full of hope and healing.  After receiving a life changing bone marrow transplant, his mom writes about challenges that continue to be a reality as well has the happiness and joy of her family.

Paper Thin Butterfly Skin

 

 

Once Upon A Butterfly

 

Loving Life with Luke

 

 

 

Waiting for Happy

 

 

 Through the Eyes of Jesus

 

Rising Above it All

 

Evan’s Journey 

 

Garrett’s House

In honor of her son, Sara has created a blog that has become a valuable resource to many EB families and advocates.

 

 

My Photo

Jennifer’s EB Woundcare Info

 

 

 

 

 

 

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