“EB”ing a Mommy

Courtney Roth’s powerful and inspiring blog about her son Tripp’s journey with Junctional Epidermolysis Bullosa.

Before the Morning

Patrice Williams chronicles life with their son Jonah who suffers from Junctional EB Non Herlitz.

Good Times Delgado Style

Vanessa and Jason Delgado share their experiences and the role that faith plays in their lives.

My Romanian Butterfly

Caroline Ruhl and he journey as an advocate and caregiver for Romanian orphan Raul, who suffers from Recessive Dystrophic EB.

Bella’s Blessings

Despite losing his daughter Bella to Epidermolysis Bullosa, Tim Ringgold continues to inspire and motivate others through his beautiful words. He continues to fight for those with EB though Pioneering Unique Cures for Kids, which he is the Director of.

Cure EB – Believe

Kerri Spinazola EB mom and a passionate advocate for her daughter Melina and all of this who suffer. She created this site to help raise awareness and educate others about EB.

Katelyn Marie

This site will highlight what is going on with Katelyn and her rare genetic skin condition Epidermolysis Bullosa (EB). She has Junctional Epidermylosis Bullosa with Pyloric Atresia (JEB-PA).

a mom, a boy, a stuffed dad and a new little lady

Follow the journey of sweet little Eli Burkhart who has EB Simplex Dowling Meara.

My Unique Stars

Whitney chronicles life and all of the ups and down of dealing with Epidermolysis Bullosa.

Team Joella

Joella’s blog celebrates her life and her journey with Epidermolysis Bullosa.

Loving Our Little Monkey

Daylon’s story is one full of hope and healing. After receiving a life changing bone marrow transplant, his mom writes about challenges that continue to be a reality as well has the happiness and joy of her family.