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Tag Archives: Advocacy
Fourth grader is an inspiration to her classmates
Many of us spend years trying to find a cause to move us to action, and we strive to make a difference. Well Kaelin Thomas is doing just that! At only 10 years old, Kaelin is making a difference in her community and … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Awareness, EB, EPidermolysis Bukllosa, Epidermolysis Bullosa
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Remembering Tripp Roth
I wanted to share the blog post that I wrote for This Little Light in memory of Tripp Roth as he was such a large part of the inspiration behind this entire project. Today a little butterfly flew by me. I thought … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Courtney Roth, Epidermolysis Bullosa, Tripp Roth
6 Comments
Inspirational stories – Life with Epidermolysis Bullosa
In our lives we will encounter opportunities to do something great, to be a part of something bigger than ourselves. We can choose to ignore those opportunities, or we can embrace them and seek to be better people. I have … Continue reading
In the spirit of Thanksgiving…
As we prepare for Thanksgiving, I wanted to write a quick post to thank everyone for their overwhelming support of this awareness campaign. I never imagined that a little idea and a little passion would ignite a similar passion into others. … Continue reading
Advocacy, One Year Later…
The last several weeks have been somewhat bittersweet, for it was one year ago that my life took an interesting direction, one that I never could have imagined. It was a year ago when this path unfolded and I am … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Awareness, EB Awareness Week 2012, Epidermolysis Bullosa, Tripp Roth
5 Comments
No one planned for this…a personal story of advocacy…
Along this journey, I have had the privilege to meet some amazing people, people who share my passion, people like my friend Andrea Ness. Andrea like me has chosen this path because she was impacted by a life that was cut short because … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Andrea Ness, Aubrey Joy Oberlin, Aubrey's 5K, EB, Epidermolysis Bullosa
8 Comments
EB Advocacy…a personal story
Some of us have chosen this path of advocacy because we have been impacted in some way by a story we have read or someone we have met. Others have been set on this path not by choice, but because … Continue reading
