Tag Archives: Amplatz Children’s Hospital

Reflecting on 2012 – Epidermolysis Bullosa Awareness and Advocacy

Posted on January 4, 2013 by Christie Zink

As I reflect on the last year, I think about how this journey began and the opportunities that have come from it.  As we enter into this new year, I would like to just take a look back at some of the … Continue reading →

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Sharing your gifts…advocate and make a difference

Posted on November 10, 2012 by Christie Zink

Hope, there is always hope.  It is something that I firmly believe…and hope, the difference does start with you… In the past I have been asked about what lead me to Pioneering Unique Cures for Kids and the work being … Continue reading →

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The heart of research…finding a cure for EB

Posted on September 8, 2012 by Christie Zink

Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to … Continue reading →

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