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Tag Archives: bone marrow transplant
Reflecting on 2012 – Epidermolysis Bullosa Awareness and Advocacy
As I reflect on the last year, I think about how this journey began and the opportunities that have come from it. As we enter into this new year, I would like to just take a look back at some of the … Continue reading
Posted in Epidermolysis Bullosa
Tagged Amplatz Children's Hospital, Aubrey, Aubrey's 5K, bone marrow transplant, Easton Freidel, Easton Friedel, Epidermolysis Bullosa, Jakub Tolar, Tripp Roth, U of M, University of Minnesota
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Inspirational stories – Life with Epidermolysis Bullosa
In our lives we will encounter opportunities to do something great, to be a part of something bigger than ourselves. We can choose to ignore those opportunities, or we can embrace them and seek to be better people. I have … Continue reading
Sharing your gifts…advocate and make a difference
Hope, there is always hope. It is something that I firmly believe…and hope, the difference does start with you… In the past I have been asked about what lead me to Pioneering Unique Cures for Kids and the work being … Continue reading
EB Advocacy…a personal story
Some of us have chosen this path of advocacy because we have been impacted in some way by a story we have read or someone we have met. Others have been set on this path not by choice, but because … Continue reading
