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Tag Archives: EB
Fourth grader is an inspiration to her classmates
Many of us spend years trying to find a cause to move us to action, and we strive to make a difference. Well Kaelin Thomas is doing just that! At only 10 years old, Kaelin is making a difference in her community and … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Awareness, EB, EPidermolysis Bukllosa, Epidermolysis Bullosa
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No one planned for this…a personal story of advocacy…
Along this journey, I have had the privilege to meet some amazing people, people who share my passion, people like my friend Andrea Ness. Andrea like me has chosen this path because she was impacted by a life that was cut short because … Continue reading
Posted in Epidermolysis Bullosa
Tagged Advocacy, Andrea Ness, Aubrey Joy Oberlin, Aubrey's 5K, EB, Epidermolysis Bullosa
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EB Advocacy…a personal story
Some of us have chosen this path of advocacy because we have been impacted in some way by a story we have read or someone we have met. Others have been set on this path not by choice, but because … Continue reading









