Tag Archives: Jakub Tolar

Reflecting on 2012 – Epidermolysis Bullosa Awareness and Advocacy

Posted on January 4, 2013 by Christie Zink

As I reflect on the last year, I think about how this journey began and the opportunities that have come from it.  As we enter into this new year, I would like to just take a look back at some of the … Continue reading →

Posted in Epidermolysis Bullosa | Tagged , , , , , , , , , , | Comments Off

The heart of research…finding a cure for EB

Posted on September 8, 2012 by Christie Zink

Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to … Continue reading →

Posted in Epidermolysis Bullosa, I Refuse | Tagged , , , , , , , , , , , , , , | Comments Off