Tag Archives: Tripp Roth

Remembering Tripp Roth

Posted on January 13, 2013 by Christie Zink

I wanted to share the blog post that I wrote for This Little Light in memory of Tripp Roth as he was such a large part of the inspiration behind this entire project. Today a little butterfly flew by me. I thought … Continue reading →

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Reflecting on 2012 – Epidermolysis Bullosa Awareness and Advocacy

Posted on January 4, 2013 by Christie Zink

As I reflect on the last year, I think about how this journey began and the opportunities that have come from it.  As we enter into this new year, I would like to just take a look back at some of the … Continue reading →

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In the spirit of Thanksgiving…

Posted on November 21, 2012 by Christie Zink

As we prepare for Thanksgiving, I wanted to write a quick post to thank everyone for their overwhelming support of this awareness campaign.  I never imagined that a little idea and a little passion would ignite a similar passion into others. … Continue reading →

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Sharing your gifts…advocate and make a difference

Posted on November 10, 2012 by Christie Zink

Hope, there is always hope.  It is something that I firmly believe…and hope, the difference does start with you… In the past I have been asked about what lead me to Pioneering Unique Cures for Kids and the work being … Continue reading →

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Advocacy, One Year Later…

Posted on October 25, 2012 by Christie Zink

The last several weeks have been somewhat bittersweet, for it was one  year ago that my life took an interesting direction, one that I never could have imagined.  It was a year ago when this path unfolded and I am … Continue reading →

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The heart of research…finding a cure for EB

Posted on September 8, 2012 by Christie Zink

Epidermolysis Bullosa…I remember the first time I ever came across those words.  I did not realize at the time that those words would impact me so profoundly.  It was late at night and I happened to see the link to … Continue reading →

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